🧠 Neurodivergent-Affirming Research Checklist
A tool to evaluate whether a study honors the dignity, agency, and complexity of neurodivergent people
This checklist is rooted in values of neurodivergent thriving: self-determination, lived experience, collective care, creative expression, and resistance to pathologizing norms.
Framing & Language
Does the research use identity-first language (e.g., “autistic people”) in alignment with community preferences?
Is neurodivergence framed as a natural and valuable part of human diversity—not a disorder or deficit to be corrected?
Does the language reflect respect and nuance, avoiding clinical or pathologizing terms unless critically examined?
Are the goals focused on supporting authenticity, autonomy, and well-being, rather than compliance, normalization, or behavior control?
Affirming language reflects dignity and avoids medicalizing differences unless clearly necessary.
Purpose & Ethics
Is the study designed to support ND lives, not to suppress, cure, or erase neurodivergent traits?
Do the researchers share their positionality (e.g., whether they are ND, allies, clinicians), and reflect on their role with humility?
Does the research prioritize quality of life, self-expression, and choice over productivity or performance metrics?
Are risks, power imbalances, and potential harms clearly acknowledged? Does the study include harm-reduction principles?
Affirming research is transparent, reflexive, and grounded in care.
🗣️ Inclusion of Lived Experience
Are neurodivergent people actively involved in the research—not just as subjects, but as collaborators, consultants, or leaders?
Is the research co-produced or participatory, shaped by the voices and values of ND communities?
Are ND-led scholars, creators, or organizers cited, acknowledged, and centered?
If the study involves children, are their experiences, autonomy, and rights considered—not just parental or professional views?
Affirming research values lived experience as essential knowledge.
Outcomes & Measures
Are outcomes based on what matters to ND people—like comfort, connection, sensory safety, or communication—rather than neurotypical ideals like “eye contact” or “quiet behavior”?
Are sensory, emotional, and relational experiences treated as valid and meaningful data?
Are alternative forms of expression (e.g., stimming, behavior as communication, AAC) recognized and respected?
Affirming measures reflect real lives, not just observable behaviors.
Contextual Awareness
Does the research account for intersectionality, including how race, gender, class, sexuality, and trauma shape ND experiences?
Does it explore social, sensory, and systemic barriers—instead of locating “problems” within the individual?
Are issues like diagnostic bias, cultural invalidation, and access to care acknowledged?
Does the study challenge ableism or reflect on how research structures may reinforce it?
Affirming research sees people in context—not in isolation.
📣 Dissemination & Access
Is the research open access, or shared in ways that are accessible to the communities it impacts (e.g., plain language summaries, infographics, zines)?
Are findings returned to the community that contributed to the research?
Are the ethical implications and potential misuses of the research explored—especially around coercion, surveillance, or behavioral control?
Affirming research shares power—not just findings.
🌈 Bonus: Neuroqueer-Inspired Reflections
Does the study celebrate difference as meaningful, joyful, or creatively generative—not just something to manage or reduce?
Does it challenge rigid norms about development, emotion, or communication, making room for fluidity, ambiguity, and neurodivergent ways of being?
Are non-normative expressions of identity, gender, emotion, or behavior treated as valid?
Does the study include or value joy, sensory pleasure, resistance, play, or connection as meaningful outcomes?
Affirming research expands what counts as success, progress, and knowledge.
✨ Reflection Notes
I have been working on developing this when sorting through all the research I read AND workshops I attend to help me filter through what to save, keep, and pay attention to because I hoard information.
I thought it might also be interesting for others. I’m not a researcher, but I love research and hate when it’s used for evil.
I think:
A study might check many boxes and still carry bias.
A flawed study might be a starting point for transformation.
No study will check all these boxes.
I’m Kristen McClure, MSW, LCSW—a therapist with 30 years of experience, a child and mental health advocate, and a neurodivergent-affirming coach. I run a therapy practice in Charlotte, NC, and have developed a comprehensive, neurodivergent-affirming program for ADHD and AuDHD women.
🔹 Learn more about the Flourish program: here
🔹 Join the waitlist for the next Flourish cohort: here
🔹 Join my free, affirming community for neurodivergent women: here
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I also write four free newsletters on Substack, covering ADHD advocacy, neurodivergent children, and therapist topics.
Thanks for reading the ADHD advocate.
Thank you for this, it's a great tool! I have one pondering (my brain loves clarity in its lined up ducks). It's around the use of identity first language as a community preference. Can anything ever be a "community" preference? The concept of neurodiversity suggests that this will always be personal preference. So then, is it that this is understood and explicitly acknowledged in the research as being the participants choice? Love your work x